Understanding Dialysis Patient Perspectives on Advocacy

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Understanding Dialysis Patient Perspectives on Advocacy.

Iapplaud the study by Schober et al in this issue of AJKD, which focuses on patients treated with dialysis to assess their attitudes and overall potential to engage in advocacy related to chronic kidney disease (CKD). As the study states, even though more than 25 million Americans live with CKD and more than 400,000 require maintenance dialysis therapy for kidney failure, funding for CKD resear...

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Dialysis Patient Perspectives on CKD Advocacy: A Semistructured Interview Study.

BACKGROUND Health advocacy groups provide education, raise public awareness, and engage in legislative, scientific, and regulatory processes to advance funding and treatments for many diseases. Despite a high burden of chronic kidney disease (CKD) in the United States, public awareness and research funding lag behind those for other disease states. We undertook this study of patients receiving ...

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Patient value: Perspectives from the advocacy community

All health-care systems are under financial pressure and many have therefore developed value frameworks to assist decision making regarding access to treatment. Unfortunately, many frameworks simply reflect the clinically focused values held by health-care professionals rather than outcomes that also matter to patients. It is difficult to define one single homogeneous set of patient values as t...

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Patient perspectives on informed decision-making surrounding dialysis initiation.

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ژورنال

عنوان ژورنال: American Journal of Kidney Diseases

سال: 2017

ISSN: 0272-6386

DOI: 10.1053/j.ajkd.2016.10.002